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From the Desk

A message from MDA's Executive Director...

What an amazing event this year’s MDA Run for Strength was on Sunday! I would have to say it was our most enjoyable fun run held to date with a crowd of more than 1,000 people and so far we have raised close to $30,000. The weather was perfect with bright sunny skies and the crowd was in fantastic form with an abundance of happy smiling faces and laughs shared.

There were hundreds of superheroes zooming along the track and it was great to see so many of our MD community taking part. You can check out some of the event photos on our Facebook page here... [CONTINUES]

To view the full 'From the Desk' article click on the 'Read more' link...

(17 February 2015)Read more...

Have your say on the new Disability Employment Framework

Today, the Abbott Government announced the launch of a national public consultation to inform development of a new Disability Employment Framework.

MDA is encouraging all members of the MD community - including those people living with MD, families, carers and disability workers - to either make a submission or attend a forum to have their voice heard. An Issues Paper has been released to encourage discussion about the current approach and the best ways to support people with disability to find long-term, meaningful employment.

To read the Issues Paper click here or to make a submission register here.

To read more about the Disability Employment Framework click on the 'Read more' link...

(25 May 2015)Read more...

People, pies and prizes all make for successful event for MDA

There’s nothing better than a delicious warm pie on a cold autumn’s night, unless, that pie is also served with a side of gratitude.

This is just what was on offer last Thursday night, 21 May, when long-time friends of MDA, Paul and Christine Freestone (pictured left), hosted a Pie Night to thank some very special supporters of MD. The married couple began supporting MDA over six years ago when they donned their hiking boots and trekked Nepal along with a group of other like-minded people in the ChallengeMD! 2009 Nepal event.

More than 60 people gathered at the Freestone’s ‘man cave’ in Tullamarine to network, share stories and join together in the fight for MD... [CONTINUES]

To view the full article and photos click on the 'Read more' link...

(25 May 2015)Read more...

IT'S A BIRD... IT'S A PLANE... NO IT'S THE NEW MDA MASCOT!

Check out the new MDA mascot who's just flown into our offices!

Proud supporter of 2015 Superhero Day for Muscular Dystrophy - Rubie's Deerfield - have loaned MDA a life-size Superman to get us all excited for this year's National Superhero Week (31 Aug - 4 Sept).

Register for the event at: www.superherodaymd.com

(21 May 2015)Read more...

EducationMD 2015

EducationMD builds a bond between educators and children with MD

Friday, 8 May, saw the Muscular Dystrophy Australia (MDA) Head Office in North Melbourne turn into a hive of activity when the annual EducationMD seminar brought together a group of more than 35 education and health care professionals. The Professional Development Day is hosted by MDA at no cost to attendees and aims to educate a range of education and health care workers, from: teachers, teacher’s aids, allied health professionals and other health service employees. 

(15 May 2015)Read more...

Dystrophy Divas help raise more than $4,000 for MDA!

A big thank you to the amazing Dystrophy Divas for organising the second annual Coffex morning tea to raise funds for MDA and having a special Mother's Day twist this year! And a special thank you to long time supporter of MDA, Coffex Managing Director Fong Loong, for graciously providing the use the space and his time to help host the event.

Last weekend, Saturday 2 May, saw close to 50 people gather at the Coffex Head Office in Brunswick for a delicious brunch of savoury and sweet delights, along with an informative barista session and a tour behind the scenes of the coffee roasting factory...[CONTINUES]

To view the full article and photos click on the 'Read more' link...

(08 May 2015)Read more...

Congratulations on completing your degree, Ryan Struk!

Muscular Dystrophy Australia would like to congratulate Ryan Struk on recently completing his Bachelor of Arts with Distinction (majoring in International Relations and Middle Eastern Studies) at Deakin University. Ryan has been a diligent student and dedicated himself to his studies, with all of his hard work paying off on Thursday 16 April when he attended his graduation ceremony.

MDA is very proud of Ryan for his excellent commitment to achieving this goal and we wish him all the best in this next chapter in continuing his education... [CONTINUES]

To view the full article click on the 'Read more' link...

(04 May 2015)Read more...

Research Update

Duchenne MD research news update

There have been several developments in the past month with regard to the development of treatments for Duchenne MD. This includes two “firsts” for Duchenne MD – the first successful phase 3 clinical trial and the first New Drug Application to the US regulatory authorities (the FDA). In addition, a clinical trial of a gene therapy approach to boost muscle growth has started.

(03 May 2015)Read more...

Register now for the 2015 ChallengeMD! Great Ocean Walk

You can now register to take part in the next event in the ChallengeMD! series for a 4-day hike along the Great Ocean Road, Victoria.

Opened in 2006, the Great Ocean Walk spans 91km of spectacular coastal scenery, deserted wild beaches, sheer cliffs, historical lighthouses and shipwrecks, giant mountain ash forests and abundant native wildlife. It is destined to become one of the great walks of the world and it’s here right on our doorstep.

RAW Travel and MDA are offering the chance to experience this 4 day adventure, including transport from Melbourne, walking guides, food and accommodation. Four days of trekking through magnificent coastline, forest and landscape - departing Friday 4th December and returning Monday 7th December 2015...[CONTINUES]

Click on the 'Read more' link for further information...

(29 April 2015)Read more...

Delays in MD diagnosis

Study finds parents frustrated with delays in MD diagnosis

A study supported by Muscular Dystrophy Australia has found that children with Duchenne MD are diagnosed at the age of five on average, but parents express concern about symptoms several years earlier. This delay is often stressful for families, impedes early access to treatment and increases the risk of having a second affected child...

(28 April 2015)Read more...

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Muscular Dystrophy Limited
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Australia

Phone +61 3 9320 9555
Fax+61 3 9320 9595

ACN 122 847 161

Muscular Dystrophy Association Inc
111 Boundary Road North Melbourne VIC 3051
Australia

Phone +61 3 9320 9555
Fax+61 3 9320 9595

ABN & DGR 33 376 893 530 Assoc Reg No. A 14397Z

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