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From the Desk

 A new message from the MDA Executive Director Boris M Struk

... All these years on and it is sometimes hard to fathom how far MDA has come in helping the national MD community. We provide research, care, services and programs to families with a member affected by the disorder from the second they receive the diagnosis, something I so desperately yearned for my own family all those years ago.

(08 October 2014)Read more...

Media Release

Multicultural community gathers to support Muscular Dystrophy

This weekend at the Masters Home Improvement store in Roxburgh Park, Victoria, thousands of people will gather for a multicultural festival celebrating the community and raising awareness for Muscular Dystrophy.

“We are so grateful for the Multicultural Family Festival choosing Muscular Dystrophy Australia as their charity of choice for the proceeds of several raffles this weekend,” said Muscular Dystrophy Australia’s Executive Director, Boris M Struk.

Khodr Elmarhbe and Kareem Kiryakos from the Multicultural Family Festival have been involved in community events in one or another for over 25 years. This year they decided to give back to the community and put on a festival to give back to the community and to make it as affordable as possible... [CONTINUES]

To download the full media release click on the 'Read more' link...

(16 October 2014)Read more...

Publicity


Check out all of MDA's publicity, media releases and coverage

You can view all of MDA's publicity and media coverage by visiting the MDA Publicity Page by clicking here.

To view or download any of MDA's media releases you can visit the Media Releases Page by clicking here.

(15 October 2014)Read more...

Media Release

MDA boss is finalist in Victorian Senior Australian of the Year Award

Muscular Dystrophy Australia (MDA) is proud to announce that the MDA Executive Director, Boris M Struk, has been chosen as a finalist in the Victorian Senior Australian of the Year Award.

There are four finalists in this division and Mr Struk has been chosen alongside three academics with the other finalists comprising of a Neurologist, a Microbiologist and a Bioinformatician.

“It is an absolute honour to be one of four candidates competing for this prestigious award and I am privileged to be chosen in contention with such high calibre finalists in my category, as well as all whom were nominated,” said Mr Struk. [CONTINUES]

To download the full media release click on the 'Read more' link...

 

(08 October 2014)Read more...

Research News

Phase 3 Duchenne MD clinical trial starts recruitment

Sarepta Therapeutics has started recruiting for its phase 3 clinical trial of exon skipping drug ‘eteplirsen’ in the USA. This drug has the potential to treat around 13 percent of boys with Duchenne muscular dystrophy (MD) — those with a particular genetic change (or mutation). It is designed to correct mutations located near exon 51 of the dystrophin gene.

(07 October 2014)Read more...


2014 National Superhero Week Media Coverage

2014 National Superhero Week received an amazing amount of media coverage from television appearances on Channel Nine's Today Show and Channel Nine News, to masses of regional and metro newspaper articles including a feature in the Herald Sun newspaper, as well as radio coverage.

You can view all event media on the Superhero Day for MD Facebook page by clicking here or on the ‘Read more’ link.

Some of the notable media coverage is listed below:

(08 September 2014)Read more...

 

National launch of Superhero Week featured on Channel Nine News

The national launch of Superhero Week was featured in a short clip on the Channel Nine News presented by Peter Hitchener yesterday 3 September 2014 .

You can watch the video here or click on the 'Read more' link... 

(04 September 2014)Read more...

Superhero Day on Channel Nine’s Today Show with Karl Stefanovic

Boris M Struk, Executive Director Muscular Dystrophy Australia interviewed about Superhero Day for MD with Channel Nine's Today Show.

You can view the video here or click on the 'Read more' link below...

(01 September 2014)Read more...

MEDIA ALERT: MDA on Channel 9’s Today Show Mon 1 Sept 7.50am

In very exciting news, MDA would like to announce that our Executive Director Boris M Struk has been scheduled to be interviewed in a live cross from a school celebrating Superhero Day for MD with Channel Nine's Today Show on Monday morning 1 September 2014.

Boris will be chatting to Karl Stefanovic and Lisa Wilkinson via video link on the first day of 2014 National Superhero Week.

Date: Monday 1 September 2014

Time: Approximately 7.50am

Where: On Channel Nine's Today Show

About: 2014 National Superhero Week

Tune in and make sure to catch the interview live! We will also be posting a link to the segment once we obtain it.

(29 August 2014)Read more...

YOU CAN STILL REGISTER TO HOST A SUPERHERO DAY!

It’s not too late to register! We are still accepting registrations for Superhero Day for MD.

The publicised closing date has now been reached but we are still welcoming all late registrations.

As soon as you register you receive all information via email so you can start planning your event immediately and a hard copy kit will be posted within 3-5 days. You can also still order capes as long as you leave 5 business days for them to be posted to you.

For more information call MDA on (03) 9320 9555.

To download the Registration Form or Cape Order Form visit the event website at: www.superherodaymd.com

(22 August 2014)Read more...

Show Archived Articles

Muscular Dystrophy Limited
111 Boundary Road North Melbourne VIC 3051
Australia

Phone +61 3 9320 9555
Fax+61 3 9320 9595

ACN 122 847 161

Muscular Dystrophy Association Inc
111 Boundary Road North Melbourne VIC 3051
Australia

Phone +61 3 9320 9555
Fax+61 3 9320 9595

ABN & DGR 33 376 893 530 Assoc Reg No. A 14397Z

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